ROS1ders UK National Conference 2026
We invite all patients to join us for a meaningful time to connect and meet with old friends and new faces alike, while learning about the newest breakthroughs together
Conference Details:
- The conference is free to attend for patients and one adult companion, aged 18 or over, per patient.
- Conference Date : 3rd & 4th Sept 2026
- Conference Venue : Marriott, Regents Park, London (#128, PO # NW3 3ST)
What is included:
- Stay: Accommodation for 1 patient + 1 companion (above 18 years of age) included for the 3rd of Sept 2026.
- Dining: All meals (Breakfast (4th Sept.), Lunch (3rd & 4th Sept.), tea breaks (3rd & 4th Sept.) and our Gala Dinner (3rd Sept.) are included.
- Travel: We provide a reimbursement of upto £100 within UK, and upto £200 for Scotland, Wales & Northern Ireland on actuals which includes parking & travel.
- Full access to the Marriott’s heated swimming pool and Gym is included for the 3rd and the 4th of Sept.
- Gain insights from the UK’s foremost authorities on ROS1 and participate in a dedicated Q&A session
- Socialise with fellow patients
Programme Details:
- 3rd Sept 2026
- 8:30 am to 10:30 am - Registration
- 10:30 am to 11:00 am - Tea/Coffee/Cakes
- 11:00 am to 11:15 am - Ms. Catherine Paul (Chair)- Introduction/Welcome
-
11:15 a.m. to 12:00 p.m. - Dr. Qamar Ghafoor (Session Chair), Service Lead Oncologist at University Hospitals Birmingham NHS Foundation Trust.
ROS1 patient journey (session 1): ROS1 diagnosis, TKIs, and radiotherapy -
12:00 - 12:40 p.m. - Prof Gary Middleton (Professor of Medical Oncology)
ROS1 patient journey (session 2)- resistance, gene loss, and future research. - 12:40 pm to 1:40 pm - Lunch break (Buffet)
-
1:40 pm to 2:25 pm - Dr Alexandra McDougall (Palliative Medicine Consultant), Ms Deepti Bhargava (Neurosurgeon/pain management expert)
ROS1 patient journey (session 3)—Palliative care & Pain management -
2:25 pm to 3:00 pm - Mr Binod K Singh (Orthopaedic Knee Surgeon),
ROS1 patient journey (session 4)—Orthopaedic Intervention - 3:00 pm to 3:40 pm - Q&A Session on ROS1 patient journey
- 3:40 pm to 4:45 pm - Hotel Check-in, rest
- 4:45 pm to 5:30 pm - Tea/Coffee/Cake/socialise
- 5:30 pm to 6:15 pm - Welcome drinks
-
6:30 pm to 7:15 pm - Dr. Tom Newsom Davis (Keynote Speaker) Thoracic Medical Oncologist & BTOG Chair
Young Lung Cancer - 7:15 pm onwards - Gala Dinner
- 10:00 pm – Evening Wrap-Up - While our scheduled program ends at 10:00 pm, the space remains available for patients who wish to keep the conversation going and spend more time together.
- 4th Sept 2026
- 8:30 am to 9:30 am - Breakfast
- 9:30 am to 10:00 am - Ms Catherine Paul (Chair) Updates on Charity + Future vision
- 10:00 am to 10:30 am - Mrs. Michelle Takai & Mr. Louis Gump (Founding members, ROS1ders UK)
- 10:30 am to 11:00 am - Mrs. Julia Bunting (Treasurer) Income/Expenses Disclosure
- 11:00 am to 11:30 am - Tea/Coffee/Cakes
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11:30 am to 12:30 pm - Ms. Nicola De Lobel (Clinical Nurse Specialist)
What does your nurse want you to know? - 12:30 pm to 1:30 pm - Lunch break (Buffet)
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12:30 pm to 1:30 pm - Dr Ramesh Bulusu (Consultant Oncologist & PAWS GIST Chair)
Recognize Pneumonia, Blood Clots, and Cardiac Emergencies - 1:30 pm to 2:45 pm - Activity
- 2:45 pm to 3:30 pm - Clinical Trials - TBC
- 3:30 pm to 4:00 pm - Tea/Coffee/Cakes
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4:00 pm to 4:50 pm - Prof Sanjay Popat (Medical Oncologist)
What happens when treatment fails? -
4:50 pm to 5:00 pm - Ms. Catherine Paul (Chair)
Closing remarks - 5:00 pm - End of Conference
How to Book
We request you to please fill up this form for our ROS1ders UK National Conference – 3-4 Sept’26.
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Please feel free to reach out if you’d like more information.
Recognising our Sponsors
Nuvalent Inc. and Eisai Limited have provided financial support for the educational aspects of this meeting and have had no influence on its content.
